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{"id":295031,"date":"2023-04-01T00:51:19","date_gmt":"2023-03-31T21:51:19","guid":{"rendered":"https:\/\/www.davutgulec.com\/?p=295031"},"modified":"2023-04-01T00:52:07","modified_gmt":"2023-03-31T21:52:07","slug":"engellilige-ve-gorme-kaybina-yol-acan-nadir-bir-hastalik-noromiyelitis-optika-spektrum-bozuklugu","status":"publish","type":"post","link":"https:\/\/www.davutgulec.com\/engellilige-ve-gorme-kaybina-yol-acan-nadir-bir-hastalik-noromiyelitis-optika-spektrum-bozuklugu\/","title":{"rendered":"Engellili\u011fe ve g\u00f6rme kayb\u0131na yol a\u00e7an nadir bir hastal\u0131k: N\u00f6romiyelitis Optika Spektrum Bozuklu\u011fu"},"content":{"rendered":"

N\u00f6romiyelitis Optika Spektrum Bozuklu\u011fu, merkezi sinir sisteminin otoimm\u00fcn hastal\u0131\u011f\u0131d\u0131r. G\u00f6z siniri ve omurili\u011fi tutan ve tekrarlay\u0131c\u0131 ataklarla karakterize nadir g\u00f6r\u00fclen bu hastal\u0131k, k\u00f6rl\u00fc\u011fe ve felce neden olabilmekte ve hastalar\u0131n ya\u015fam s\u00fcresini k\u0131saltabilmektedir. Alexion, AstraZeneca Nadir Hastal\u0131klar T\u00fcrkiye Medikal Direkt\u00f6r\u00fc Uzm. Dr. Banu K\u0131l\u0131\u00e7 Ta\u015fk\u00f6pr\u00fc, NMOSD hastal\u0131\u011f\u0131 hakk\u0131nda \u00f6nemli bilgiler payla\u015ft\u0131.
\u00a0Otoimm\u00fcn hastal\u0131klar v\u00fccudun kendi dokular\u0131na kar\u015f\u0131 geli\u015ftirdi\u011fi istenmeyen imm\u00fcn yan\u0131t sonucu olu\u015fan hastal\u0131klard\u0131r. NMOSD hastal\u0131\u011f\u0131n\u0131n olu\u015fumunda, merkezi sinir sisteminde yer alan Aquaporin 4 ad\u0131 verilen spesifik bir proteine kar\u015f\u0131 antikorlar geli\u015fmekte ve bu antikorlar nedeni ile kompleman sistemi aktifle\u015ferek merkezi sinir sisteminde ve sinirlerin miyelin k\u0131l\u0131f\u0131nda hasara yol a\u00e7maktad\u0131r.
\u00a0Bu belirtilere dikkat
NMOSD hastal\u0131\u011f\u0131n\u0131n g\u00f6r\u00fclme s\u0131kl\u0131\u011f\u0131 ile ilgili net bir bilgi bulunmamakla birlikte, NMOSD \u00e7ok nadir bir hastal\u0131k olup her 100.000 ki\u015fide 1-3 vaka oldu\u011fu d\u00fc\u015f\u00fcn\u00fclmektedir. Mart, NMOSD Fark\u0131ndal\u0131k Ay\u0131 vesilesiyle g\u00f6r\u00fc\u015f bildiren Alexion, AstraZeneca Nadir Hastal\u0131klar T\u00fcrkiye Medikal Direkt\u00f6r\u00fc Uzm. Dr. Banu K\u0131l\u0131\u00e7 Ta\u015fk\u00f6pr\u00fc, tek veya iki tarafl\u0131 g\u00f6rme kayb\u0131, \u00e7ift g\u00f6rme, bulant\u0131, h\u0131\u00e7k\u0131r\u0131k, kol ve bacak g\u00fc\u00e7s\u00fczl\u00fc\u011f\u00fc, y\u00fcr\u00fcme g\u00fc\u00e7l\u00fc\u011f\u00fc gibi belirtilerle hastalar\u0131n hekime ba\u015fvurdu\u011funu vurgulad\u0131 ve s\u00f6zlerine \u015funlar\u0131 ekledi: \u201cNMOSD’de g\u00f6rme kayb\u0131, g\u00f6rme sinirinin tutulmas\u0131 sonucunda g\u00f6zden gelen g\u00f6rme ile ilgili iletilerin beyindeki g\u00f6rme alan\u0131na iletilememesi ile olu\u015fmaktad\u0131r. Engellili\u011fe ve g\u00f6rme kayb\u0131na yol a\u00e7an ciddi bir hastal\u0131k oldu\u011fundan, hasta yak\u0131nlar\u0131n\u0131n deste\u011fi \u00e7ok b\u00fcy\u00fck \u00f6nem ta\u015f\u0131maktad\u0131r. Hasta yak\u0131nlar\u0131n\u0131n fark\u0131ndal\u0131\u011f\u0131 en az hastalar\u0131n fark\u0131ndal\u0131\u011f\u0131 kadar kritiktir.\u201d
NMOSD belirtileri olan hastalar N\u00f6roloji alan\u0131ndaki uzman hekimlerine ba\u015fvurmal\u0131
NMOSD belirtileri olan hastalar\u0131n, tan\u0131 ve tedavi i\u00e7in N\u00f6roloji uzman hekimlerine ba\u015fvurmas\u0131n\u0131 \u00f6neren Uzm. Dr. Banu K\u0131l\u0131\u00e7 Ta\u015fk\u00f6pr\u00fc, hastal\u0131\u011f\u0131n tedavi se\u00e7enekleri i\u00e7in \u015funlar\u0131 s\u00f6yledi: \u201cNMOSD’de \u00fc\u00e7 farkl\u0131 \u015fekilde tedavi yap\u0131lmaktad\u0131r. Bunlardan ilki, ataklar\u0131n tedavisi. Ataklarda steroid tedavisi kullan\u0131lmaktad\u0131r. Steroid tedavisi d\u0131\u015f\u0131nda plazma de\u011fi\u015fimi (plazmaferez) tedavi olarak kullan\u0131labilmektedir. Plazma de\u011fi\u015fimi tedavisinde hastal\u0131\u011f\u0131n\u0131n olu\u015fumunu sa\u011flayan antikorlar v\u00fccuttan temizlenmektedir. \u0130kinci tedavi, ataklar\u0131n \u00f6nlenmesi. Hastada ataklar\u0131n \u00f6nlenmesi ve engellilik durumunun ilerlememesi i\u00e7in ba\u011f\u0131\u015f\u0131kl\u0131k sistemini bask\u0131lay\u0131c\u0131 tedaviler kullan\u0131lmaktad\u0131r. Bu tedaviler uzun s\u00fcreli tedaviler olup ba\u011f\u0131\u015f\u0131kl\u0131k sistemini bu hastal\u0131\u011fa kar\u015f\u0131 d\u00fczenleyici olan tedavi se\u00e7enekleridir. Bu tedaviler hastalar\u0131n klinik durumlar\u0131na g\u00f6re tercih edilmekte ve al\u0131nan yan\u0131ta g\u00f6re bu tedavilerde de\u011fi\u015fiklik yap\u0131labilmektedir. \u00dc\u00e7\u00fcnc\u00fc tedavi se\u00e7ene\u011fi ise atak ile olu\u015fan semptomlar\u0131n tedavisi. Hastalarda olu\u015fan semptomlar nedeni ile ilgili bran\u015f hekimleri taraf\u0131ndan (dahiliye, \u00fcroloji, fizik tedavi ve rehabilitasyon, psikiyatri vb.) bu semptomlara y\u00f6nelik tedaviler uygulanmaktad\u0131r.\u201d
Alexion, AstraZeneca Nadir Hastal\u0131klar NMOSD ile ilgili yeni tedaviler i\u00e7in \u00e7al\u0131\u015f\u0131yor
Uzm. Dr. Banu K\u0131l\u0131\u00e7 Ta\u015fk\u00f6pr\u00fc: \u201cHer ge\u00e7en g\u00fcn artarak devam eden bilimsel \u00e7al\u0131\u015fmalar ve faaliyetler \u00e7er\u00e7evesinde NMOSD ilgili fark\u0131ndal\u0131k d\u00fczeyi sa\u011fl\u0131k profesyonelleri nezdinde artmaktad\u0131r. Alexion, AstraZeneca Nadir Hastal\u0131klar olarak, N\u00f6romiyelitis Optika Spektrum Bozuklu\u011fu (NMOSD) ile ilgili yeni tedaviler geli\u015ftirmek \u00fczere \u00e7al\u0131\u015fmalar\u0131m\u0131z devam etmektedir. Ayr\u0131ca NMOSD konusunda uzmanla\u015fm\u0131\u015f hekimlere y\u00f6nelik aktivitelerle bu hastal\u0131k konusunda fark\u0131ndal\u0131k yaratmaya \u00e7al\u0131\u015f\u0131yoruz. Alexion, AstraZeneca Nadir Hastal\u0131klar ekibi olarak, NMOSD hastal\u0131\u011f\u0131ndan muzdarip olan hastalar\u0131n hayat\u0131n\u0131 iyi y\u00f6nde d\u00f6n\u00fc\u015ft\u00fcrmek i\u00e7in bu konuda \u00fczerimize d\u00fc\u015fecek g\u00f6revlerle katk\u0131 sa\u011flamaya, insan sa\u011fl\u0131\u011f\u0131 ad\u0131na her ge\u00e7en g\u00fcn daha fazlas\u0131n\u0131 yapmaya daima haz\u0131r\u0131z\u201d dedi.<\/p>\n","protected":false},"excerpt":{"rendered":"

N\u00f6romiyelitis Optika Spektrum Bozuklu\u011fu, merkezi sinir sisteminin otoimm\u00fcn hastal\u0131\u011f\u0131d\u0131r. G\u00f6z siniri ve omurili\u011fi tutan ve tekrarlay\u0131c\u0131 ataklarla karakterize nadir g\u00f6r\u00fclen bu hastal\u0131k, k\u00f6rl\u00fc\u011fe ve felce neden olabilmekte ve hastalar\u0131n ya\u015fam s\u00fcresini k\u0131saltabilmektedir. Alexion, AstraZeneca Nadir Hastal\u0131klar T\u00fcrkiye Medikal Direkt\u00f6r\u00fc Uzm. Dr. Banu K\u0131l\u0131\u00e7 Ta\u015fk\u00f6pr\u00fc, NMOSD hastal\u0131\u011f\u0131 hakk\u0131nda \u00f6nemli bilgiler payla\u015ft\u0131. \u00a0Otoimm\u00fcn hastal\u0131klar v\u00fccudun kendi dokular\u0131na …<\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[6],"tags":[],"class_list":["post-295031","post","type-post","status-publish","format-standard","","category-saglik"],"_links":{"self":[{"href":"https:\/\/www.davutgulec.com\/wp-json\/wp\/v2\/posts\/295031","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.davutgulec.com\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.davutgulec.com\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.davutgulec.com\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.davutgulec.com\/wp-json\/wp\/v2\/comments?post=295031"}],"version-history":[{"count":0,"href":"https:\/\/www.davutgulec.com\/wp-json\/wp\/v2\/posts\/295031\/revisions"}],"wp:attachment":[{"href":"https:\/\/www.davutgulec.com\/wp-json\/wp\/v2\/media?parent=295031"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.davutgulec.com\/wp-json\/wp\/v2\/categories?post=295031"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.davutgulec.com\/wp-json\/wp\/v2\/tags?post=295031"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}